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Osimertinib User Reviews, Experiences

Experience reports on the drug Osimertinib:

Posted in Antineoplastic and immunomodulating agents
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Reviews, Experiences, Questions

  1. Milly

    I would now like to encourage everyone. My wife (60 years old) was diagnosed with a lung tumor in April 2023, Egfr mutation exon19. My wife is sporty and doesn’t smoke. A world collapsed for us. Osimertinib 80mg therapy was started in mid-May 2023. My wife actually tolerates the therapy well, with the side effects that almost everyone has. Fingertips and toe tips inflamed, sometimes more, sometimes less. The first CT scan was then carried out in August 2023 and the primary tumor shrank from 11 cm x 3 cm to 1.4 cm. As far as I can remember, the metastases were no longer present. Only the right side of my wife’s lung is affected. The last CT was done in January 2024. According to the findings, no more tumor is visible and there are no more metastases.

  2. Peter

    Hi all, 3 years ago, completely unexpected diagnosis of 10cm lung cancer with metast. in the spine as a never-smoker. The swollen lymph nodes in the mediastinum are pressing on nerve conduits, total congestion and constant hiccups. EGFR.
    After 2 days of Tagrisso total improvement, after 1 year (unnecessary?) radiotherapy, no cancer detectable for 2 years. Every 3-4 months I stopped for approx. 10 days (against medical advice) to regenerate stomach, wound healing. Still existing side effects:
    Permanent: sensitive abdominal wall, flatulence, delayed wound healing, thin skin.
    Sometimes: sore spots in the oral mucosa, small bleeding from the cheek and skin of the nose.
    Rarely: Completely “unfounded” infections of the – thin – skin similar to Lyme disease e.g. in the back of the knee, on the neck, disappears immediately with Diprogenta ointment.
    I am quite fit/athletic. I can’t attribute the lower maximum performance capacity to age 63 or the side effects.
    All the best to you
    Good luck Peter

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